Advocacy Groups and Educational Websites

  • Peripartum Cardiomyopathy (PPCM) Survivor Support - Facebook
    Mission Statement:

    PPCM awareness saves lives and promotes recovery. 

    link to Advocacy Group:

    Visit the Facebook PPCM Survivor Group

  • Peripartum Cardiomyopathy Network
    Mission Statement:

    The Peripartum Cardiomyopathy Network (PCN) is a network of physicians, nurse practitioners, physician assistants and nurses at clinical sites across the United States and Canada dedicated to both clinical care and investigation of peripartum cardiomyopathy (PPCM). Information about the ongoing REBIRTH trial can be found here. 

    link to Advocacy Group:

    Link to Website

  • LetsTalkPPCM
    Mission Statement:

    The mission for LetsTalkPPCM is to eradicate peripartum/postpartum cardiomyopathy as a life-threatening heart disease found in pregnancy by advancing research, treatment, education, short films, and awareness.

    LetsTalkPPCM offers PPCM Workshops and Screening Training for birth workers and health care providers. We provide free PPCM Patient Advocate Support, BNP Blood Testing, and Postpartum Exams to help bridge the gap in this area.

    We encourage women who've experienced: High blood pressure,  Preeclampsia, Multiple births, Heart murmur, Hyperemesis gravidarum, Fertility treatments, Covid-19, and Family history of heart disease to request a BNP blood test during and after pregnancy.

    Through PPCM screenings and timely intervention, serious problems can often be avoided.

    Contact:
    Brianna Henderson, President
    Advocacy Group Email:

    letstalkppcm@yahoo.com

    link to Advocacy Group:

    Visit LetsTalkPPCM