You will receive updates via text messaging, phone call and/or email about every 3-6 months. Updates from the PPCM-R may include (1) requests to update your demographic or health data; (2) requests or reminders about new surveys, to finish incomplete surveys, or to start a new survey; (3) information about how to link or upload your medical records and/or for specific medical record requests.
You may also receive periodic updates via text messaging, phone call and/or emails pertaining to updates about the PPCM-R, news about research findings, general care guidelines or educational resources, information about meetings/conferences, opportunities to participate in clinical studies or trials, and/or notifications about future natural history studies.